Dealing with Stigma: Experiences of Persons Affected by Disabilities and Leprosy

Table 4

Understandings of leprosy, disability, and cure.

People affected by leprosy		People affected by disabilities
Indonesian	English	Indonesian	English
Leprosy		Disability
Rematik	Rheumatic	Bentuk tubuh berbeda, tidak normal	Different form of body, abnormal
Bercak	Skin patch	Rusak	Broken
Mati rasa	Loss of sensitivity	Tidak bisa digunakan	Cannot be used
Bengkok	Crawling hands	Cara beda, tidak normal	Different way, abnormal
Putus	Falling apart fingers	Palsu	Prosthesis
Luka	Wound	Katarak	Cataract
Pegallinu	Pain	Polio	Polio
Gatal	Itchy	Diperlakukan sebagai orang sakit	Be treated as patients
Kambuh	Reaction	Disuruh di rumah	Asked to stay at home
Ke puskesmas sebulan sekali ambil obat	Once a month take medicine from the community health service	Dilindungi karena sakit	Protected due to illness
Rutin minumobat	Take medicine routinely	Diabaikan karena tidak berguna	Ignored due to uselessness
Dinasehati terus	Be continually advised	Pakai alat (kruk, kursi roda, tongkat putih, etc.)	Use device (wheelchair, crutch, white cane, etc.)
Causes
Kotor	Dirty	Virus	Virus
Guna-guna	Magic	Dari lahir	From birth
Kutukan	Curse	Keturunan	Genetic
Keturunan	Genetic	Kecelakaan	Accident
Alergy	Allergy	Tidak bisa sembuh dan sudah nasib	Cannot cure, destiny
		Dosa	Sin
Cured
Sembuh berarti tidak ada bercak, pegal linu dll	Cure means no skin patch, no pain, and so forth	Tidak ada pengobatan	No medical treatment
Sembuh berarti stop minum obat	Stop taking medicine	Tidak perlu berobat, ke dokter, ke puskesmas	No need to see doctor, no need to take medicine from community health service
Diterima	Be accepted	Dipandang bila punya uang, kerja/usaha, status sosial, dekat dengan pemerintah dan tokoh masyarakat	Be recognized if having money, job/business, social status, close with government and community leader
Bisa beraktivitas (kerja, sekolah, ke pasar, ke sawah dll)	Can perform activities (work, school, market, farm, etc.)