The Impact of Raising Children with Barth Syndrome on Parental Health-Related Quality of Life and Family Functioning: Preliminary Reliability and Validity of the PedsQL™ Family Impact Module
Table 1
Summary statistics for child and parent demographic variables.
Characteristics
Total ()
Unaffected ()
BTHS ()
value
Child age
11.10 (4.12)
10.74 (3.64)
11.53 (4.65)
.4245
Child sex
.0005
Male
60 (83.33)
27 (69.23)
33 (100.00)
Female
12 (16.67)
12 (30.77)
0 (0.00)
Parent race
<.0001
Non-Hispanic White
51 (70.83)
20 (51.28)
31 (93.94)
Other
21 (29.17)
19 (48.72)
2 (6.06)
Parent education
<.0001
Graduate or professional degree
42 (58.33)
31 (79.49)
11 (33.33)
Less than graduate or professional degree
30 (41.67)
8 (20.51)
22 (66.67)
Marital status
.4935
Married
61 (84.72)
32 (82.05)
29 (87.88)
Other
11 (15.28)
7 (17.95)
4 (12.12)
Employment status
.0212
Full-time
49 (68.06)
31 (79.49)
18 (54.55)
Less than full-time
21 (29.17)
7 (17.95)
14 (42.42)
Missing
2 (2.78)
1 (2.56)
1 (3.03)
Family income
.6502
$80,000 or above
37 (51.39)
21 (53.85)
18 (46.15)
Less than $80,000
35 (48.61)
16 (48.48)
17 (51.52)
Note: (SD) for child age; (%) for the others (e.g., parent race). Categorical variables were analyzed by the Chi-square test or Fisher’s exact test. Continuous variables were analyzed by independent -test.
