|
Variable | n | (%) | |
|
Knowledge about principles and implications of genetics | | | Range = 3–11; mean = 8.49; SD = 1.63 |
Knowledge of implications of consanguinity on heritable diseases/conditions | 197 | 92.9 | |
Knowledge of implications of late parity on heritable diseases/conditions | 167 | 78.8 | |
Knowledge of influence of the environment on genetic disorders | 186 | 87.7 | |
Knowledge of tests and procedures used in genetic testing | | | |
Breast tumor analysis for BRCA1/BRCA2 mutations | 61 | 28.8 | |
Amniotic fluid analysis for fetal defects | 174 | 82.1 | |
Capillary blood analysis of newborns genetic diseases in newborns | 144 | 67.9 | |
|
Beliefs about advantages of genetic testing | | | Range = 0–6; mean = 3.4; SD = 2.2 |
Believe that testing would provide important information | 112 | 52.8 | |
Believe that testing would lead to improved risk assessment | 170 | 80.2 | |
Believe that testing would lead to improved treatment | 140 | 66.0 | |
|
Beliefs about disadvantages of genetic testing | | | Range = 13–53; mean = 34.3; SD = 7.14 |
Believe that testing would breach privacy and confidentiality | 121 | 57.1 | |
Believe that abnormality would have negative impact on the family | 111 | 52.3 | |
Believe that testing would cause emotional trauma | 47 | 22.2 | |
Believe that results would cause other to view them negatively | 28 | 13.2 | |
Believe that results would result in feelings of being “singled out” | 19 | 9.0 | |
Believe that genetic abnormality would cause a sense of shame | 17 | 8.0 | |
|
Perceived utility of gene testing | | | Range = 0–6; mean = 5.6; SD = 1.1 |
Believe that gene testing would provide information about disease risk | 199 | 93.9 | |
Believe that gene testing would personalize screening/diagnostics | 199 | 93.9 | |
Believe that gene testing would lead to personalize treatments | 191 | 90.1 | |
Believe that gene testing would provide health information for lifestyle intervention | 198 | 93.4 | |
|
Provider trust and involvement in health care decisions | | | Range = 31–80; mean = 60.5; SD = 9.1 |
Trust the provider’s medical judgment
| 148 | 69.8 | |
Trust that providers place their needs above other considerations | 143 | 67.5 | |
Providers refer for specialized testing as needed | 190 | 89.6 | |
Follow provider’s medical advice | 172 | 81.1 | |
|
Willing to participate in health-related study that included gene analysis | 116 | 54.7 | |
Willing to complete detailed questionnaires about family history | 113 | 55.3 | |
Willing to allow the collection of environmental samples | 94 | 44.3 | |
Willing to provide biological specimens for gene analysis | 109 | 51.4 | |
Willing to participate in longitudinal studies | 94 | 44.3 | |
|