Research Article

Validation of an Individualized Measure of Quality of Life, Patient Generated Index, for Use with People with Parkinson’s Disease

Table 3

Comparison of the PGI against standard PRO measures at the domain level among people who endorsed the area.

Identified as an area of concern on the PGI
Mean (SD)
Median (Q1–Q3) (N)
Not identified as an area of concern on the PGI
Mean (SD)
Median (Q1–Q3) (N)
Independent t-test or Mann–Whitney U test, value

Walking (higher is better)45.0 (27.3)71.9 (24.0)0.0006
RAND-36 physical function index40.0 (25.0–65.0) (19)80.0 (50.0–95.0) (46)

Depression (higher is worse)4.5 (2.8)1.8 (2.2)0.009
Geriatric depression scale4.5 (2.5–7.0) (8)1.0 (0.0–3.0) (62)

Memory/concentration (higher is worse)34.6 (12.1)23.4 (10.6)0.0004
Perceived Deficits Questionnaire-2036.5 (25.0–44.0) (15)22.0 (17.0–30.0) (52)

SD, standard deviation; N, number; Q1, quartile 1; Q3, quartile 3.