Patient and Caregiver Perceptions of Airway Clearance Methods Used for Cystic Fibrosis
Table 1
Demographic characteristics.
Characteristics
Numbers
Percent
Identity of respondent
59
Patient
45
76%
(i) 18 years or older
31
53%
(ii) 17 years or younger
14
24%
Parent/guardian
14
24%
Spouse
0
0%
Patient’s gender
56
Male
31
55%
Female
25
45%
Nonbinary
0
0%
Transgender female
0
0%
Transgender male
0
0%
Others
0
0%
Prefer not to say
0
0%
Patient’s race/ethnicity†
52
White
51
98%
Others
2
4%
American Indian/Alaska native
1
2%
Black/African American
1
2%
Asian
0
0%
Hispanic/Latinx
0
0%
Native Hawaiian/Pacific Islander
0
0%
CFTR modulator
53
Ivacaftor
2
4%
Lumacaftor/ivacaftor
1
2%
Tezacaftor/ivacaftor
2
4%
Elexacaftor/tezacaftor/ivacaftor
38
72%
None of these
10
19%
Median
IQR
Patient’s age, N = 56
20
[13.5 – 30.0]
‡FEV1% predicted, N = 28
90
[76.0 – 110.5]
The number of completed responses for each question is given. Percentage is calculated based on the number of complete responses for each question. †Respondents could choose more than one entry; percentages may exceed 100%. ‡Patient reported spirometry results. N = 4 responses were removed because raw FEV1 values were reported rather than FEV1% predicted.